We are a unique charity providing ‘Nursing Care at Home’ for local children who have a life-threatening or terminal illness.
Based in the Chichester area of West Sussex, The Sussex Snowdrop Trust provides:
The Children’s Community Nurses support families from the time a child is diagnosed and throughout their illnesses.
Support a family by providing respite, either by taking siblings or the Snowdrop child out or playing with them in their own home.
Our counsellors offer the familes valuable emotional support and bereavement support.
The charity helps in any way that can relieve parents of the extra financial problems that occur when a child has a life threatening or terminal illness.
The charity funds a paediatric nurse to work at Fordwater School in Chichester – a school for children with ‘special needs’ and complex medical diagnosis.
Donations go towards paying for our dedicated team of Community nurses who support our Snowdrop families on a day to day basis.
We’re passionate about what we do, and the events we hold. Here’s some of our most recent news.
There are currently 61 local children on the Snowdrop pathway. The Snowdrop pathway is for children who are diagnosed with a life threatening or terminal illness.
We cover Hayling Island, Emsworth, Chichester, Bognor Regis, Selsey, Arundel, Billingshurst, Petworth and Midhurst areas.
About £500,000 is spent annually on direct family care, which includes paying the wages of our specialist Care at Home Team, as well as the urgent financial requests for equipment or petrol vouchers to support families whose child is receiving treatment in hospital.
On diagnosis the Consultant Paediatrician refers the child to the Children’s Community Nursing Team. The family are then contacted and visited by one of the Care at Home Team within 48 hours.
They support families from the time a child is diagnosed and throughout their illnesses. They visit the children in their homes to teach and enable parents to be confident as they care for their child. The nurses also liaise with other professionals involved in the child’s care.
